Fitness with a chronic illness

everyday Fitness with a chronic illness, I didn’t think that was an option! I took almost a year off from Just Mildly Medicated. I posted occasionally on the FaceBook page and kept active on Instagram, but not the blog. I’m not sure you missed me, sometimes when someone stops showing up that happens and it’s okay. I am going to be back. There are multiple reasons I am coming back, mostly because I still need to share my journey. When I left you I had started cardiac rehab. I was a reluctant participant at the beginning and was frustrated when I would really try only to be hailed down by a nurse and told my heart rate was too high and slow down, but I kept showing up. In my last post...

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this Dysautonomia gal is a Work in Progress

everyday A work in progress, this Dysautonomia gal is working hard towards the progress. We’ll call this work in progress Eat, Exercise, Love… Unfortunately eating mostly whole foods, exercising, and loving the heck out of me as well as everyone around me is not going to cure any of my medical issues. I’d be wary of people who claim any differently, and they’re out there. My own cardiologist is convinced cardiac rehab is just going to zap my autonomic system back online. The truth is I am just trying to work WITH my body, and it’s issues, instead of fighting my body or hating it. After being diagnosed with Dysautonomia (dysfunction of the autonomic nervous system) which impacted pretty much my entire body I started seeing my body as separate from ME, after all it was...

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Cardiac Rehab and Dysautonomia

image Cardiac Rehab and Dysautonomia Exercising with Dysautonomia can be tricky. Dysautonomia literally means dysfunctional autonomic nervous system. Your autonomic system is responsible for everything your body is busy doing that you don’t have to give any thought to. You can thank your autonomic system for handling things such as digestion, temperature regulation, heart rate, and blood pressure. When your autonomic system decides to slack off, or be flat out non-compliant, exercise can be difficult. In just standing, let alone exercise, you’re body is working overtime to try and keep your blood pressure, heart rate, and oxygen levels appropriate. When your body is flat out non-compliant you struggle with an abnormal cardiovascular response to just about everything.  This puts you in a category of people who are both considered orthostatic and exercise intolerant...

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Scrambled Egg Muffins – A Gastroparesis Friendly Food!

IMG_0557 Scrambled Eggs Muffins (Yeah for easy Gastroparesis friendly foods!) I am not reinventing the wheel here, this recipe has been done many times over, Martha Stewart even had it on her show a million years ago. It is however new at the Just Mildly Medicated house and I wanted to share it. Many people with autonomic issues deal with Gastroparesis, Gastroparesis is a motility disorder where part of your stomach in paralyzed making it harder to digest food properly. Three of the six of us in my crew deal with Gastroparesis and one of them also has Celiac Disease. Needless to say finding easy meals that are also easy to tolerate is always a plus. Eggs can be a go to food for those with Gastroparesis, but I am no super mom...

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I’m baaack

where are you So there was this one mildly medicated chick that used to have a blog about life with Dysautonomia… and then she disappeared from the blogosphere… I have been flattered and surprised by the number of people who have come out of the wood work that messaged and emailed me asking what the heck was going on, where did the Just Mildly Medicated girl go?   I forgot that others were sharing in my health journey… (wow, that sounds corny) I second guessed my value; I wondered if I really had anything else worthwhile to write about? I doubted you were even still out there… I questioned if I had any business writing at all.   Now don’t get worried, I wasn’t rocking in a corner crying. I was just distracted and discouraged from writing...

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I forgot my meds…

medical radical and nonconformist I forgot my meds, a lot of days in a row… okay, a lot of weeks in a row… I think most people on a long term prescription routine fall off the wagon, be it a Just Mildly Medicated gal juggling many prescriptions or someone who has one steady nagging medication to take daily forevermore.  This is about the summer when I was a Medical Radical and Pharmaceutical Nonconformist, okay so really it was more that I was just a pissy slacker. Many people make this choice; they get tired of paying for the medications, taking the medications, feeling the side effects of the medications, and not so much the original alleviation the medication was supposed to provide. They decide it isn’t working for them and discuss it with their...

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Life with Pandysautonomia

Rach As a blogger it only makes sense that I am also a blog reader. Occasionally I find a blogger that makes me sit and read while mumbling, “Seriously, she nailed it, that is exactly how I feel!” Well that is exactly how I feel about Rach from The Chronic-Ills of Rach. Take a second to read Rach’s 30 Things About My Illness and then head over to her blog and check her out!   30 Things About My Invisible Illness You May Not Know 1. The illness I live with is: Pandysautonomia 2. I was diagnosed with it in the year: 2012 3. But I had symptoms since: I was a teenager 4. The biggest adjustment I’ve had to make is: to the difference between what I hoped my life would be like...

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Red Band Society (IMO)

fallrisk_bracelet1 The Red Band Society is a new show that premiered September 17th on Fox about a group of teenagers who are currently in a pediatric ward of a hospital. There seems to be a heavy emphasis on them “living” there when in fact the entire first season covers a 3 week period. The show has mixed reviews at best and I can see why.  The pilots focus seemed to be on the preexisting relationships as well as the ones newly forming. The medical issues seemed very secondary, bordering a sympathy pull at best. They portray varying ages and conditions, which is a plus. Though one of the kids is prepping for surgery the others are in various stages of hanging out. There are some things that I had a hard time getting over. Things...

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A peek into life with Chiari Malformation

chiari_malformation_awareness_5_posters-r9b0370e4775d4f34b17ea138a906e3fe_wad_8byvr_512 Last summer I went to a very fun Blog conference called Blog U, while there I met Christi from Ditching the Masks. When we met we did a typical “spoonie” thing. She came up to me and said “Hey you’re Carrie, the Just Mildly Medicated girl right? I’m Christi and I have Chiari.” Then we hugged and made lots of sarcastic remarks and drank wine coolers at an 80’s retro prom… you know, typical stuff. When Invisible Illness Week came up I knew I wanted to see if Christi would give us a peek into 30 things about her life with Chaiari, whoohoo she said yes.   30 Things About My Invisible Illness You May Not Know 1. The illness I live with is: Chiari Malformation 2. I was diagnosed with it...

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Katya on Life with P.O.T.S and R.I.S

Katya I am always surprised by the connections that I have made through my chronic illness. Katya is one of those connections. I am happy that Katya was willing to share some of her life with *P.O.T.S as many who suffer with the condition are teenage girls. Katya is a 16 year old who has been living life with *dysautonomia for over a year now and I am glad she chose to share some of her story with us during Invisible Illness Awareness Week. 30 Things About My Invisible Illness You May Not Know  1. The illness I live with is: Postural Orthostatic Tachycardia Syndrome, or POTS.  I also have RIS, Radiologically Isolated Syndrome. 2. I was diagnosed with it in the year: I was diagnosed with POTS at Mayo Hospital in...

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