Poop? Well I never!

I always said I’d never write a post about poop. I have read a lot of bloggers that have, but no way not me… Well yesterday changed my mind. Many people with chronic illnesses suffer from constipation. Things like chronic dehydration and frequent pain medication can be contributors. There are illnesses that play a part in constipation, gastroparesis is a partial paralysis of the stomach so things don’t quite get a move on the way that they should. Now I know many people are on the other side of the poop pendulum but this is my story and we will get to all that moves quickly later… bear with me… oh, the poop puns! In this story you have to understand that we’re talking about constipation in a way that when my...

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My Favorite Bag for IV Therapy

Every gal has a favorite bag, even us chronically sick chicks. So why is it I was using a bag daily that I didn’t like? When you use IV therapy regularly you become familiar with a black back pack, yes, a black back pack. Everything you need for the day fits snugly and it truly does the job of carrying around a CADD pump, lines, IV bag, saline and heparin to flush the port, and all other accessories that go along with IV therapy. But I was done using a bag I didn’t like every single day I knew it was time to consider some new options. I looked at a few bags I already owned but none really fit what I wanted, I had no luck at all in stores. It wasn’t until...

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A little Q and A

I was over on The Wheelchair Mommy and I saw this Q and A and thought I would play along. WHAT AM I… Making: My laundry pile disappear… Cooking: Tortilla Soup Drinking: Water, water, and some more water Oh and smoothies, my favorite is Vanilla Almond Milk, Strawberries, a few blueberries and banana I Instagrammed that awesomeness… (yep go follow me on Instagram) Wanting: The call that Canine Partners for Life has my Service Dog! Looking: A smoothie, I totally got up and made one ;) Playing: I am embarrassed to say when the kids give me space and I am not engrossed in reading I do play Sims Wasting: Umm, clearly time playing Sims when I should be writing… Wishing: did I mention a service dog… Enjoying: My sons swim...

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Touring Canine Partners for Life

My tour of Canine Partners for Life   I have been on a wait list for a service dog trained at Canine Partners for Life for over two years. My wait has been longer than the average person as I am looking for a service dog that can both perform basic mobility tasks and also alert to my abnormal blood pressure and heart rate fluctuations. To add to the details in alerting we also need to have a service dog that is a poodle or low to non-shedding poodle mix, one of my children has an allergy to pet dander.   While on the wait list fora service dog, I have had the pleasure of making connections with other people who suffer from Dysautonomia that are partnered with service dogs. I’ve also...

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Pop Sugar – Shopping for the Sick Chick

  Shopping for trendy gifts for friends and family, or even a little treasure for yourself, can become difficult when you’re dealing with illness. I wanted to be able to give gifts I was proud of giving but having a hard time going shopping was making it difficult. I, like most of us, am often shopping online but not being in the stores and seeing the new products took some of the fun out of shopping. Last year I stumbled on to the Pop Sugar Must Have Box though I knew the odds were I was possibly wasting some money, I ended up pleasantly surprised.  I managed to set aside trendy fun gifts for holidays and birthdays as well as a few things for me that I loved. This month I am keeping the...

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BlogU, the (re)view from the wheelchair

BlogU, the (re)view from the wheelchair   I was able to attend BlogU14 this June with some of my favorite bloggers and couldn’t wait to share the awesomeness with you all. BlogU14 was the dream-child of Stephanie, the amazing blogger behind Binkies and Briefcases. After finding some of the popular blogging conferences very large leaving newer bloggers a bit lost in the shuffle, she wanted to create a weekend packed with information but also focusing on personal connections. With the help of some very talented blogging buddies and sponsorships from American Public University, Nick Mom, and The Huffington Post her dream became a reality. I felt it was important to share with you what BlogU was like for me personally, as someone with a chronic illness and wheelchair user. I...

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Reflecting; I need to show a little doctor love

After some reflection on the topic of doctors I feel like I need to show a little love. I know I am quick to giggle at a funny doctor meme   I’ve even challenged one to a recumbent bike race, and I’ve been known to break up with a few specialists. I’ve shared loads of conversations that were infuriating… but funny. Like this one from a trip to the ER… “It could be worse, you have something rare that we don’t know how to treat, but it doesn’t seem to be terminal. We see things much worse than this” Wow, umm, thanks… “In India there isn’t a specialist in the entire country for what you have.” Umm, we are still in Missouri, right? But I am afraid I may be coming off as unappreciative of how...

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WEGO Health; And the winner is…

WEGO Health, and the winner is (this is where the drum roll should be) Me! Seriously … I know, I couldn’t believe it either. I was awarded the WEGO Heath Activist ‘Best Kept Secret’ Award. The awesome part about winning this particular award is that I may be a small fish in a big pond but the other fish think I’m doing something good here. I always thought it was cheesy thing when nominees for anything would say, “It’s an honor just to be nominated.” I have to say it was just an honor to be nominated; it was pretty awesome that as a finalist I even received some WEGO loot! WEGO Health Finialist   In all seriousness it did mean everything to me. Before Dysautonomia (Orthostatic Intolerance and Postural...

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Mayo Clinic for Dysautonomia Conclusion

The week of many doctor appointments was over, I was emotionally and physically exhausted but I was heading home. After a few days at home getting back into our routine and catching up on “vacation” laundry I received the summary of my week from Mayo in the mail. I will give you some of specifics of my testing in order to tell my story but in no way encourage the sick chick contest. The truth is people are individuals and we all have different baselines of our own personal normal. On to the test results, don’t worry; I won’t bore you with all of it. These are just the likely diagnosis after each test and a few highlighted comments. * Vestibular Test (Make You Dizzy and See What Happens) Diagnosis:...

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Mayo Clinic; Testing, Testing 1,2,3…

So my first appointment at Mayo had me in a little bit of a mood, then having to hang out for another day waiting for our insurance to authorize referrals left me a bit… well ironically, anxious. We did get out around Rochester Tuesday, a burger place called Newt’s where things you haven’t imagined are happening. After a great lunch I was back to work. I called my insurance company, they told me I needed to have the referrals sent to my Primary Care Manager. I then called my PCM let them know to be on the lookout for the referrals and to submit them ASAP as I am sitting around in a hotel waiting. I then call Mayo to make sure they have the best numbers to reach my...

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