Posts Tagged ‘medications’

I forgot my meds…

September 24th, 2014 by Carrie, the Just Mildly Medicated gal

I forgot my meds, a lot of days in a row… okay, a lot of weeks in a row…

I think most people on a long term prescription routine fall off the wagon, be it a Just Mildly Medicated gal juggling many prescriptions or someone who has one steady nagging medication to take daily forevermore.  This is about the summer when I was a Medical Radical and Pharmaceutical Nonconformist, okay so really it was more that I was just a pissy slacker.

radical

Many people make this choice; they get tired of paying for the medications, taking the medications, feeling the side effects of the medications, and not so much the original alleviation the medication was supposed to provide. They decide it isn’t working for them and discuss it with their doctor or decide to consult Google on if it is a medication that can just be stopped. (Come on, we’ve all consulted Google)

That is not this story…

To tell the story we must go back, way back… okay, it wasn’t that far back. Just take my word that I am super organized and took my meds exactly as I was supposed to, I handled my IV therapy like a pro and was hooked up (or flushed my port) at the same every day. I was also following a gastroparesis friendly diet (which I loathed), salt loading, and drinking plenty of fluids. I still didn’t feel “well” and I was a bit bitter about that, I mean who wouldn’t be?

When I spent a week at Mayo in Rochester, MN I was off meds and IV fluids for the duration. (I did stay on a few that the doctors at Mayo thought would not be good to just stop, but they were few). I actually didn’t feel all that much different. I kept waiting to come crashing down, but I felt my normal episodes and tested just about the same as before I started taking all of my medications.

It was talked about again that because of the gastroparesis (partial paralysis of the stomach linked with autonomic dysfunction) some of my meds may not be absorbing properly and I may not be receiving the benefit of them. My immediate thought was, “Then why in the hell am I taking them?!”

I tuned out on the last five minutes of the Mayo Clinic doctor speaking to me as Phil Collins came to me and sang I Don’t Care Anymore, and when Phil Collins comes to sing to you, well, you listen.

Phil also came to me and sang Sussudeo at the Cardiologist once… he and I have a connection… but I digress.

I wouldn’t say I was in a depression over the topic of being Just Mildly Medicated but apparently a seed of doubt and stubborn rebellion was planted. I think of it as a period of time that I tried to give my illness the middle finger as a treatment plan to see how that worked out.

When I came home I continuously “forgot” certain meds and became very lackadaisy with my IV treatments (lackadaisy means lazy and uncaring for any non-southern folk).  A routine that I once took very serious shifted and became a series of forgetting and not being very concerned about it. It wasn’t until months ater that a real decline in my health was undeniable.

My flares were lasting longer and happening more frequently, I still didn’t attribute it to the fact I hadn’t been taking half of the medications I was supposed to. I honestly didn’t even consider it. I can’t believe that it didn’t put a spark under me to get focused on my treatment plan, but I really didn’t admit to myself how off track I was.

It wasn’t until an episode that caught the attention of both my nurse and my husband.  In two separate conversations my husband pointed out that I’ve not been doing well and something needed to be done about it. My nurse knew my blood pressure readings had been odd and my weight changing. They both could track it to the last month and a half. That would be a month after my new routine of forgetting my meds.

I had to acknowledge to them, and myself, that I hadn’t been taking my medications as prescribed and I hadn’t stayed on top of my IV therapy; that this decline was likely of my own doing. Not a conscious choice to abandon my plan, just a gradual shift off the beaten treatment path.

meds

Dysautonomia is a chronic and progressive illness. This means it is forever and is likely to become worse over time. When taking all of my meds and IV therapy options as prescribed I still have episodes and I don’t feel “well”. However my treatment plan is important. It is designed to give me the most personal freedom over my illness that currently is offered.

I am back on track now and hope to be feeling an improvement very soon.

Love,

The reformed Medical Radical and Pharmaceutical Nonconformist Just Mildly Medicated gal <3

Keep Calm and Take your Meds

 

Want to check out when I took a tour of Canine Partners for Life for the service dog I am on a wait list for?

How about when Phil was buzzing Sussudio in my ear?

Symptoms of Dysautonomia, Side Effects of Medications and a What that f@ck to Pharmacology

January 8th, 2013 by Carrie, the Just Mildly Medicated gal

Now unless you are really interested in Dysautonomia you can just gloss over the list of symptoms and the side effects of the meds. The point really isn’t to show that the symptoms suck, that is pretty obvious, same for the side effects of the meds I take for it. So get your speed reading skills ready… on your mark… get set…Go!

Symptoms of Dysautonomia (you can find more information at Dinet.org)

Dizziness, Tachycardia, Bradycardia, Exercise intolerance, Clamminess, Anxiety, Flushing, Postprandial hypotension, Blood pooling in limbs, Intolerance to heat, Feeling cold all over, Low blood pressure upon standing, Cognitive impairment (may include difficulties with concentration, brain fog, memory and/or word recall), Narrowing of upright pulse pressure, Hypovolemia, High blood pressure, Hyperventilation, Numbness or tingling sensations, Reduced pulse pressure upon standing, Low back pain, Aching neck and shoulders , Noise sensitivity, Light Sensitivity, Disequalibrium, Disabling Fatigue, Sleep disorders, Headache/migraine, Myofascial pain, Neuropathic pain, Bloating after meals, Nausea, Vomiting,  Abdominal pain, Diarrhea, Constipation, Bladder dysfunction, Pupillary dysfunction , Blurred Vision, Tunnel vision, Arrhythmias, Chemical sensitivities, Easily over-stimulated, Food allergies/sensitivities, Hyperreflexia, Irregular menstrual cycles, Loss of appetite, Loss of sex drive, Muscle aches and/or joint pains, and Swollen nodules/lymph nodes, Polydipsia (excessive thirst)

 

Normal Side effects from the medications I take (not the worst case allergic reactions)

(you can look up information on medications at Drugs.com) (*yes that is a website)
drowsiness or dizziness; problems with memory or concentration; excitement, irritability, aggression, or confusion; loss of balance or coordination; nausea, constipation; headache, chills or goosebumps; itching or tingling of the skin; increased need to urinate or difficulty with urination; feeling of pressure or fullness in the head; dryness of the mouth; nervousness or anxiety cold symptoms such as runny or stuffy nose, sneezing, cough, sore throat; mood changes; sleep problems (insomnia), nightmares; headache, ear pain; mild fever; feeling hot; diarrhea, pain in your upper stomach; dry mouth, increased thirst; loss of interest in sex, impotence, difficulty having an orgasm, muscle weakness, loss of balance or coordination; slurred speech, drooling or dry mouth, sore gums; runny or stuffy nose; loss of appetite, blurred vision; headache; sleep problems (insomnia); skin rash; or weight gain.

Again, this isn’t intended to be a woe is me, it is intended to be a ‘What that f@ck pharmacology community’??!! You mean to tell me you just cannot come up with a medication that actually treats a medical condition that causes a few things like maybe maintain ideal weight for height, clear radiating skin or maybe restful sleep. I really think any medication that can possibly cause loss of interest in sex, impotence and/or difficulty having an orgasm should immediately be scrapped and started over. I mean really??

 

While we are on the topic of scrapping a medication and starting over; any pill that is the size of half a normal sized woman’s finger AND causes weight gain is just WRONG.

Disclaimers
* This post is written in good humor. Take your damn meds!!

I don’t have OCD, I do have a fear of slippery slopes, meth is BAD… and I am now prepping for zombies

November 21st, 2012 by Carrie, the Just Mildly Medicated gal

I have a weekly ritual of setting up my medications for the week in a perfectly organized pill pack that has each day of the week and 4 slots per day for my meds. Yes I am OCD but only on non-cleaning things; actually by definition I am not OCD at all… boy have I bought into the overuse of OCD… digression already, new record!

I always forget I have two meds that need to be cut in half and always ask the hubby for a paper towel or plate and knife when I get to those last two. You know how sometimes an inside joke is so over done but you keep doing it, yeah me too, it’s coming up. I have my IPhone with me while getting my medication prep work done for the week. Like the majority of people in America, let alone the population of stay at home mothers coupled with the people with a chronic illness, it’s opened to Facebook. The mom’s meth lab comments start which apparently means I must update my closest 350 something friends on Facebook that my family accuses me of making meth on a weekly basis.

Status Update: “You know you take too many pills when you ask for a knife, a paper towel and your pill case and the weekly meth lab jokes begin”

An awesome friend pointed out that they make pill cutter things, but I had to keep it real and let her know I like a certain element of danger so I prefer my paper towel and fruit knife method (not sure if there is a more professional chef-like name for it). Plus I like the last sliver of denial I am holding onto about being chronically ill and a pill cutter might throw me over the edge. I mean seriously, I still haven’t filled out my handicap car decal paperwork from 6 months ago and I turn the channel if I have to see the hover-round commercial. It is a slippery slope to acceptance and I really am not ready to slide down that slope face first or on my ass. I am waiting until they install a hand rail or at least until I can safely roll in a graceful manner on a day when I am not wearing a dress… or pajamas

Back to my point, not sure if you are following but the point is meth. I thought it would be funny to know how to make meth so next week I can rattle off all the things I will ask my family to bring me to make my meth when I prep my meds. No, we don’t have all of the items and I know meth is NOT funny… but me pretending to make it is kind of funny, I mean to me anyway.

So within 5 minutes I have become a meth expert, which is kind of like doing homework to learn about the state I live in. Missouri is the number 1 spot for meth labs in the US. It’s also the state of the first parachute jump, home to the invention of the ice cream cone and iced tea (I am all about education people!)

This whole meth thing has me baffled though, it’s a lot of work. Why don’t these people just go buy beer or pot even, I mean I know it’s not legal in my state but I have moved a few times and moving and taking up recreational pot is probably easier than cooking up meth on a regular basis, plus methed out people are so not hot. Wanna be methies should Google some images of meth users before going all the way. I wasn’t exactly on the fence but it scared the shit out of me.

So in short I am not making meth, one part because it’s tedious and likely to blow up, one part because meth is unarguably bad and turns people into Walkers, yeah that’s right… zombism. Apparently my state is cookin it up so this whole zombie apocalypse might start here… I need to get ready, off to Bass Pro shop!

Zombies /  Meth addicts… too hard to tell the difference