Tietze’s Syndrome, ouch

September 3rd, 2013 by Carrie, the Just Mildly Medicated gal

So I have added something new to my list of medical issues, Tietze’s Syndrome.

What the heck is that you ask?

It is an inflammation of the costochondral cartilages of the upper front of the chest that involves pain and palpable swelling of the rib bone lining and joint. It can often be mistaken for Costochondritis, but Tietze’s Syndrome includes swelling where Costochondritis does not. It can last a few weeks to a few months and on rare occasions it can be chronic.

All of the blue area is inflamed and painful to different degrees, some only to touch and others hurt when breathing.

The swelling is not so easy to see because… well… most of the front of my rib cage is appropriately covered, but you get the point. I was getting ready to FaceTime my mom when I saw my image and giggled, mostly because my hair looked like I was a lunatic, but after that I sighed because I could see where I hurt.

Chaine

I didn’t want Chaîne to be blamed for any swelling so I circled her. Chaîne is my port, she is deaccessed in this picture, meaning no needle. (yes, deaccessed is a word)

For a reason unknown to me as I am not a medical professional, I have gotten a cart before a horse again.

A syndrome, in short, is the crap that you’re stuck with because of a disorder. Tietze Syndrome can be a result of fibromyalgia, psoriatic arthritis, lupus, rheumatoid arthritis, even Crohn’s.

So which do I have? Well, I don’t know yet. First I am being treated to see if we can just make it go away with some anti-inflammatory meds and a something for the pain. Am I on board with this as a long-term plan? No, but sometimes you bend to the system because stomping your feet just hurts too much.

Signing off…

The Just Mildly Medicated gal

 

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10 Responses

  1. KELLY says:

    I’VE ALWAYS THOUGHT OF SYNDROME AS A TRASH CAN DIAGNOSIS–THEY ADD IT WHEN THEY CAN’T FIGURE OUT WHAT TO CALL IT.

  2. Erin says:

    They are like potato chips or cats…you can’t just have one….Sorry you are adding.

  3. Anastasia says:

    Actually I can see it well. It “looks” like you have a push-up bra on and you’re standing up but then if you look again you can tell (ty gravity) that you’re laying down and yes where your “girls” are and they are were they are supposed to be. and that’s when you realize you have “something” above them. Your neck is also swollen (This coming from a woman that just lost over 45 lb. I’ve been 120-250+ lbs so I can see what is and is not weight) But maybe it’s also a sign that I’ve been a patient too many times. ouch…………

  4. Tracey Ison says:

    Just what u didn’t need! Glad you shared! It lessens the shock!
    I’m happy to see that u are still smiling in your pic, somedays must be awful and get u down. I’m on a similar roller coaster of emotional medical situations! So I can empathise.
    Keep sharing, it not only helps you, but it also helps us! Thankyou

  5. Rusty Hoe says:

    Arghhhh. I’ve had costo a few times which is bad enough, so sorry you have added this to the mix. Stupid bodies. Now going to head off and stamp my feet on your behalf.

  6. Victoria says:

    I was reading this and my heart goes out to you! I have Costochondritis, which is very painful to me, which I’ve had and was triggered after I had my gallbladder removed at 16. I can’t imagine what you are going through! Thank for explaining the difference though, I feel like a lot of people will hear a diagnosis and assume they know what it is, but in reality they don’t! I lok forward to your next post!

    ~Victoria

    simplyanchoredblog.com

  7. Hayley-Eszti says:

    Oh no Carrie not more problems :( Hope you get some pain relief soon, sending hugs! x Hayley-Eszti

    http://www.hayleyeszti.blogspot.co.uk

  8. I hope you have gotten some relief. Ellen

  9. Shannon Sypherd says:

    Hello,

    So sorry to hear your pain. I have suffered from this for 6 years on and off again. No anti-inflammatory medication has ever helped me. Finally my doctor gave me some kind of steriod. With in 2 days my pain was gone! Hope that helps.

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