Just Mildly Medicated I am a 30 something Military wife and stay at home mother of four kids and a goldendoodle pup. I happen to also have a chronic illness, thin filter and deeply rooted need to over share. There is always a story brewing. Thu, 02 Aug 2018 16:30:29 +0000 en-US hourly 1 https://wordpress.org/?v=4.9.9 55690919 Wellness in Illness /wellnessinillness/ /wellnessinillness/#respond Thu, 02 Aug 2018 16:30:29 +0000 /?p=1022 Finding Wellness in Illness   So a lot of time has passed since I was a frequent blogger. For some of you I may even be brand new. Here is a fast forward story of how I am finding “wellness in illness”. I am a 40 something wife and mother of four kids and a […]

The post Wellness in Illness appeared first on Just Mildly Medicated.

]]>
Finding Wellness in Illness

 

So a lot of time has passed since I was a frequent blogger. For some of you I may even be brand new. Here is a fast forward story of how I am finding “wellness in illness”.

I am a 40 something wife and mother of four kids and a couple of doodle pups. I happen to also have a chronic illness, a thin filter and deeply rooted need to overshare. There is always a story brewing.

Having an illness, Dysautonomia, made me feel like health and wellness weren’t options for me. They are opposing. I gave up on the idea of being well, my illness was chronic, it wasn’t ever going away.

To make a long story short I had been to the Mayo Clinic, I was using a wheelchair, and was on a wait list for a cardiac alert dog. I was also taking more medications than I could name without forgetting one. My cardiologist had told me I had run the full course with him. He had no other ideas or recommendations other than follow up appointments to monitor my progression. I made an appointment with a different cardiologist, then another. Rolling into the final cardiologist’s office she took me so off guard. To paraphrase her opening statement to me was, “I know you’re going through a lot but you’re not doing yourself any favors.”

She then went on to talk about cardiac rehab, I went on to think she was crazy. I was not able to finish 4 minutes on a stress test before having a cardiac event. My medical records actually listed me as “exercise intolerant” and this woman wants me to go exercise. So I went, mostly to prove her wrong.

I am not going to lie, it wasn’t like I showed up and started to exercise and then everything magically fell in to place, that isn’t what happened at all. The crash cart was wheeled in as a response to cardiac events my first three days. It was scary, but I kept going back. Slowly I did get stronger, now we are talking about progressing from the Arm Bike to a recumbent bike, but it was progress. I was keeping up with my fellow 70 + years young cardiac rehab guys.

From rolling in day one as a wheelchair user, midway I was back to using a cane, that was more progress than I ever expected. When they moved me over to a seated program using weights everything changed. Adding muscle helped my body regulate some of the wild blood pressure swings, it didn’t make them go away but it was helpful in not making them swing as wild. I also fell in love with those weights.

In comes Beachbody; one of the nurses came over and was giving me suggestions for some exercises to try. As I was checking out and turning in my daily heart rate monitor she told me how great I had done and that the exercises we did were from a program called Body Beast that she bought from a friend. I was telling my neighbor about it and she said she was doing a program called PiYo from the same company.

this is my new baby muscle

Oddly enough I am starting to believe you can have some wellness in illness. I immediately bought both programs on DVD, at the time there wasn’t a Beachbody On Demand. PiYo was a challenge because of the postural changes but I loved them both.

I joined a gym after cardiac rehab because I was a former gym rat years before my illness and wanted that back so badly. Now mind you my illness is still there. I am still on many medications and medically deemed disabled. It wasn’t long before I became a certified personal trainer and moved to the Fitness Manager. I often revisited Body Beast and PiYo over those years but I thought I had found my calling in that gym.

There were flares along the way but I kept going.

 

Fast forward years later I was miserable, my calling couldn’t be that gym. Things happened that were so unprofessional and I was not treated well. The personal training I was selling was expensive and the more I knew about the gym the less I wanted to be a part of it. I quit.

I reached out to my now Beachbody Sponsor Coach and told her how much I loved fitness and helping people.  We talked about how much I loved the programs from Beachbody that I had used and was considering being a Coach. When she showed me how much the company had grown and what they now had to offer I was all in. My husband, a bit more skeptical, needed some convincing. Once I showed him the Beachbody on Demand platform and we sat and binge-watched workout programs he said, “Let’s do it”.

Today my husband and I are both Beachbody Coaches. We love every second of helping people find programs best suited for their lives and goals. I cannot promise someone any specific level of wellness, but I can provide support while you find what that looks like for yourself.

email me at: Carrie_StrongerEveryDay@yahoo.com

Instagram: Carrie_StrongerEveryDay

SnapChat: CarrieJessica

The post Wellness in Illness appeared first on Just Mildly Medicated.

]]>
/wellnessinillness/feed/ 0 1022
Adjusting to life with a Service Dog /service-dog/ /service-dog/#comments Mon, 11 Jun 2018 18:33:59 +0000 /?p=1013 DON’T CALL THIS A COMEBACK <insert LL Cool J voice> Okay, so it actually is a comeback. Those of you that follow me on other social media platforms, mostly Instagram, have an idea of how drastically my life has changed. It’s long overdue for me to share because a lot has happened, like adjusting to […]

The post Adjusting to life with a Service Dog appeared first on Just Mildly Medicated.

]]>
DON’T CALL THIS A COMEBACK

<insert LL Cool J voice>

Okay, so it actually is a comeback. Those of you that follow me on other social media platforms, mostly Instagram, have an idea of how drastically my life has changed. It’s long overdue for me to share because a lot has happened, like adjusting to life with a service dog. So much time has passed, and I am going to try and update you slowly. The update I think most people want is about having a service dog to alert to Dysautonomia. It may not be what you expect though.

Adjusting to life with a Service Dog:

Let’s start with the ever adorable, super smart, strong willed, and hardworking service dog Winnie!

Winnie after receiving her Canine Good Citizen

I really thought when I left for what the service dog program I went through calls “Team Training” I would start blogging again to share my experience. The problem was I didn’t have much good to say about my experience. I was literally paralyzed by the idea of sharing what I was going through. It may seem like it but I don’t have strong feelings about the specific organization. There are no rainbows and recommendations, but there is also no slander campaign. I won’t be naming them; however, I also won’t remove previous mentions of them. I am personally disappointed in my experience and professionally neutral because my experience was mine and many others have very different feelings. They also seem to be going through some significant changes and I look forward to hearing how that impacts the program.

Let me tell you about madam Winnifred. This dog is so smart, her puppy raiser family showed her so much love and positive reinforcement that she has been able to work through a lot. However, there was a time, last September specifically, that I had actually prepared to be bringing her back early December.

We did not connect well during our Team Training, she is very strong willed, and she had decided while she would alert to BP and HR fluctuations, she would not soften her heart to me. She didn’t trust me and refused to relax into me. She was barely going through the motions and it was obvious… and heartbreaking. To make matters worse, she is a vocal dog, something I had not expected in a service dog. I’ve had vocal dogs before, but it was in excitement, Winnie was vocal in her general annoyance at the world. She grumbles, sighs, huffs, and the almost deal breaker, she growls.

Our early days of Alert & ignore

I had always understood all of her vocal sounds as negative, and honestly, I still do. With the guidance of an amazing trainer once we got home I started to understand those vocal sounds are her way of telling me how she feels about a situation. After learning more about her communication I better understand what she is telling me, thus changing the way I handle certain situations. Now she is far less vocal because she isn’t put in situations where she needs to tell me her grievances.

WAIT… YOU SHOULDN’T HAVE TO ALTER YOUR LIFE FOR A SERVICE DOG!!

Yeah, in part I still feel that way, however, she is a living being and if she has a strong opinion about her work life I am okay with, quite literally, hearing her out. The saving grace in our relationship has been that the more willing I am to hear her out the fewer opinions she feels she needs to share.

Winnie and I were so much more in synch by the time December came that I saw a future for us, a real working partnership. Having a service dog is a bit like an arranged marriage AND having a really smart 8-year-old with you at all times. It has taken some adjusting on my part that I hadn’t expected.

We had a rough start, but a year later, we are a strong team and she is not only incredible at her job but is very affectionate. I imagined us seeing each other for the first time and both falling instantly in love and her doing everything I asked of her right away. Real life was different than my expectation, as it usually is.

Real life with a service dog was very different than I expected. It was much harder in the beginning than I could have imagined, and more rewarding now. Stay tuned, I’ll be sharing some about our training soon.

Checking out some zebras

The post Adjusting to life with a Service Dog appeared first on Just Mildly Medicated.

]]>
/service-dog/feed/ 1 1013
Fitness with a chronic illness /fitness-with-a-chronic-illness/ /fitness-with-a-chronic-illness/#comments Fri, 19 Feb 2016 15:04:31 +0000 /?p=998 Fitness with a chronic illness, I didn’t think that was an option! I took almost a year off from Just Mildly Medicated. I posted occasionally on the FaceBook page and kept active on Instagram, but not the blog. I’m not sure you missed me, sometimes when someone stops showing up that happens and it’s okay. I […]

The post Fitness with a chronic illness appeared first on Just Mildly Medicated.

]]>
Fitness with a chronic illness, I didn’t think that was an option!

I took almost a year off from Just Mildly Medicated. I posted occasionally on the FaceBook page and kept active on Instagram, but not the blog. I’m not sure you missed me, sometimes when someone stops showing up that happens and it’s okay. I am going to be back. There are multiple reasons I am coming back, mostly because I still need to share my journey.

When I left you I had started cardiac rehab. I was a reluctant participant at the beginning and was frustrated when I would really try only to be hailed down by a nurse and told my heart rate was too high and slow down, but I kept showing up. In my last post I said this to you on the concept of exercise making me all better.

“Unfortunately eating mostly whole foods, exercising, and loving the heck out of me, as well as everyone around me, is not going to cure any of my medical issues. I’d be wary of people who claim any differently, and they’re out there. My own cardiologist is convinced cardiac rehab is just going to zap my autonomic system back online. The truth is I am just trying to work WITH my body, and its issues, instead of fighting my body or hating it.”

That is all still holding very true. I am happy to report that I am still working out just about every day. If you have been following on Instagram you’ve seen the time I am putting into this. Here is a before and after. The blue dress photo was from March, pretty much when I disappeared from the blog-o-sphere, the pink top is from a few weeks ago.

March 2015 January 2016

March 2015                       January 2016

No, working out is not going to fix chronic illnesses that are not after effects of poor health choices. Yes, working out can make you stronger and more secure… and I mean literally more structurally sound. I wasn’t doing myself any favors, physically or mentally, by being afraid of moving. Starting was so slow it was nearly embarrassing. Who am I kidding, it was embarrassing, but progress was made.

Is my blood pressure not dropping from Orthostatic Hypotension? Well, yes, but less frequently and the strength I now have in my muscles is very helpful in keeping me up a little longer and getting to the ground slowly. Is my heart rate normal now instead of jumping all around when my I stand up (POTS)?  It can still be unpredictable but the work I have put in has made the overall time for it to return to normal much shorter and overall it happens less often.

Am I saying working out will “fix” you? No, because truth be told it just isn’t. Am I saying working out can help you become physically and mental stronger? YES, yes I am.

I believe this so much that I am currently enrolled at the National Academy of Sports Medicine so that I am able to help others by being a personal trainer. My local gym has shown specific interest in my progress physically and throughout my course. They are excited to potentially have someone on their staff who, quite literally understands, what it is like to balance health and illness.

It isn’t often that I am all positive mushy mushy, but exercise has made a huge positive impact and I just want to pay the fitness forward. If you have been thinking about trying cardiac rehab I urge you to go, it literally changed my life.

Hey, lets connect on Facebook  <~ just click it

and I am active on Instagram <~just click it

Twitter is beyond me so we’ll just skip that one

The post Fitness with a chronic illness appeared first on Just Mildly Medicated.

]]>
/fitness-with-a-chronic-illness/feed/ 19 998
this Dysautonomia gal is a Work in Progress /dysautonomiaworkinprogress/ /dysautonomiaworkinprogress/#comments Fri, 24 Apr 2015 17:04:04 +0000 /?p=985 A work in progress, this Dysautonomia gal is working hard towards the progress. We’ll call this work in progress Eat, Exercise, Love… Unfortunately eating mostly whole foods, exercising, and loving the heck out of me as well as everyone around me is not going to cure any of my medical issues. I’d be wary of people who […]

The post this Dysautonomia gal is a Work in Progress appeared first on Just Mildly Medicated.

]]>
A work in progress, this Dysautonomia gal is working hard towards the progress.

We’ll call this work in progress Eat, Exercise, Love…

Unfortunately eating mostly whole foods, exercising, and loving the heck out of me as well as everyone around me is not going to cure any of my medical issues. I’d be wary of people who claim any differently, and they’re out there. My own cardiologist is convinced cardiac rehab is just going to zap my autonomic system back online. The truth is I am just trying to work WITH my body, and it’s issues, instead of fighting my body or hating it.

After being diagnosed with Dysautonomia (dysfunction of the autonomic nervous system) which impacted pretty much my entire body I started seeing my body as separate from ME, after all it was the uncooperative enemy that began holding me back from doing what I wanted. How are you supposed to embrace the thing weighing you down? How can you treat your body well when you’re mad at it? I don’t really know how yet as we are just starting to get on a good foot in this relationship but I am hoping for positive things.

So the goals:

behappy

EAT

Eat mostly whole foods and avoid processed foods with too many chemicals to name, chill on the snacking, and keep track of what is going in my body. I have been surprised and how much and how quickly my diet changed when I was holding myself accountable for what I was eating. Working within restrictions of a Gastroparesis friendly diet and coming a bit closer to hitting those nutritional needs and losing the empty high calorie junk has eased some nausea, helped with a few pounds, and I will admit to having a bit more energy.

(Gastroparesis is a partial paralysis of the stomach which causes poor digestion, malnutrition, nausea, and vomiting. I’ll also add that I am NOT in a “flare” meaning I am not at a point where those symptoms are acute. When they are acute it will greatly impact what I am able to eat and how much.)

EXERCISE

If you’ve been around you’ll know I am in cardiac rehab, and I love it. Yes, I am there because a cardiologist thinks with some conditioning my autonomic nervous system will just decide to function normally. I do believe you can do many things to strengthen your body to help alleviate symptoms but unless you have dysautonomia truly due to deconditiong this theory makes little sense.  Luckily I have other doctors who understand the condition better but I also decided when else could I work out in a controlled environment with nursing staff right there to monitor me… my insurance covers it so I see it as amazing personal trainer time.

As I am exercising more and gaining strength and confidence in my body I am willing to try more. I am doing things like walking on completely flat surfaces for about 10 minutes at a time, that was something that 2 months ago I didn’t trust my body to do. I had passed out too many times from my autonomic system causing my heart rate to sky-rocket and my blood pressure to plummet to trust my body at all. Those abnormal responses are still happening I am just doing better at listening to my body and either going slower, waiting it out, or giving my body the break it needs… but then I am trying again.

I even did a yoga session today! Something I have said for years that I can’t do because of the postural changes. As I am getting stronger I am finding I can do it, it’s just at my pace and not someone else’s. My pace is slow, much slower than I would like, but it is time to accept I am not racing anyone, this is about me.

LOVE

As my body responds to my new ever challenging demands I am finding a better relationship. I can’t say I see my body and ME as a united front yet. We are learning to trust each other, a little dance of give and take. When I ask something new of my body, like yoga today, and it tries I am proud. When my body starts to get dizzy and over worked, like yoga today, I am trying to give it respect instead of frustration and anger. Total work in progress. 

As these changes are happening in me I am also thinking about the love outside of me. I have such an amazing supportive partner who has been a patient caregiver even when at times I know it had to be scary and frustrating. My kids more often than not chose encouragement over frustration at my limitations. For all of my crazy doctor patient dysfunction I do have a team of doctors who understand my condition and are willing to really take the time to be sure I am at the best I can be. My nurses, oh how I love the nurses involved in my care. My friends, both from way back to new ones, I am amazed at the understanding and compassion that comes from them. I am not usually an overly mushy person but I need to be sure these people really know what that means to me.

everyday

 

Are you a work in progress? What are you working on?

Did you miss about my starting Cardiac Rehab? <~ click it

 

The post this Dysautonomia gal is a Work in Progress appeared first on Just Mildly Medicated.

]]>
/dysautonomiaworkinprogress/feed/ 9 985
Cardiac Rehab and Dysautonomia /cardiacrehabanddysautonomia/ /cardiacrehabanddysautonomia/#comments Fri, 10 Apr 2015 00:57:33 +0000 /?p=969 Cardiac Rehab and Dysautonomia Exercising with Dysautonomia can be tricky. Dysautonomia literally means dysfunctional autonomic nervous system. Your autonomic system is responsible for everything your body is busy doing that you don’t have to give any thought to. You can thank your autonomic system for handling things such as digestion, temperature regulation, heart rate, and blood […]

The post Cardiac Rehab and Dysautonomia appeared first on Just Mildly Medicated.

]]>
Cardiac Rehab and Dysautonomia

Exercising with Dysautonomia can be tricky. Dysautonomia literally means dysfunctional autonomic nervous system. Your autonomic system is responsible for everything your body is busy doing that you don’t have to give any thought to. You can thank your autonomic system for handling things such as digestion, temperature regulation, heart rate, and blood pressure. When your autonomic system decides to slack off, or be flat out non-compliant, exercise can be difficult.

In just standing, let alone exercise, you’re body is working overtime to try and keep your blood pressure, heart rate, and oxygen levels appropriate. When your body is flat out non-compliant you struggle with an abnormal cardiovascular response to just about everything.  This puts you in a category of people who are both considered orthostatic and exercise intolerant as well as in need of an exercise program. You know, because life isn’t hard enough.

Most specialists that work with Dysautonomia patients advise a recumbent exercise plan along with medication, hydration, and salt loading to help combat the roller coaster of symptoms. I personally feel the most balanced in my treatment plan when I am following all of the mentioned aspects, but can admit hopping on and off the exercise bandwagon and due to my inconsistency I wasn’t seeing much in the way of results.

During a recent visit with a cardiologist I was told I needed to safely up my game. I’ve used a recumbent bike at home and during good months could average anywhere from 20 to 60 minutes 3 to 5 days a week. Truth was it just wasn’t consistent, let alone that the resistance wasn’t high enough for a challenge and my body was used to that particular exercise. When the cardiologist said she thought cardiac rehab would be a good fit for me I jumped at it.

Cardiac rehab for the Dysautonomia patient is a safe way to start or enhance a work out plan safely while having your oxygen level, heart rate, and blood pressure monitored by nurses. You’ll also have access to recumbent equipment not found at most gym facilities. The truth is you may complete the entire program and have little to no improvement in your cardiovascular response to exercise but that doesn’t mean it isn’t helping.

image

recumbent steppers and recumbent elipticals

 

Moderate intensity exercise for at least 30 minutes 5 days a week is recommend for the majority of people, including those with a chronic illness. A regular exercise program helps as a preventative measure for many health issues, improves mental health, and promotes a positive self esteem. If your cardiologist agrees that cardiac rehab is a good idea for you and your insurance approves your plan you’ll be ready to get started.

My Cardiac Rehab Suggestions:

The nurse will share the doctors approved plan, if you have concerns about this plan in any way speak up. It is not recommended for most Dysautonomia patients to exercise upright. Other than a walking test done to have a strip from the ECG of my heart rate and rhythm that was under 5 minutes I have not done anything upright in the first month that I have participated in cardiac rehab. If you are guided to warm up at a treadmill please tell them you have orthostatic issues, you’ll be shown several recumbent options.

horizontal-running

 

Have your music ready. Most people enjoy working out more if they have music they like. I use an app on my iPhone called Pandora and set of ear buds. They will usually have a few TVs and headphones available that you can borrow there as well.

You’ll have a goal, mine was 30 minutes of moderate cardio. If you’re not done don’t be done. This is a unique opportunity to be monitored during different types of exercise. There will usually be everything from weight machines, balance balls, and free weights, tell the nurse you’d like to be shown how to use them properly and also ask them to let you know how your body responds. I have found that I love working out with weights, be willing to try something new. Now that I am told when my heart rate is too high I and can lower the weights and add extra reps to get the same benefit in a way that works better for me.

Don’t be discouraged if you don’t meet your given goal, have to take the rest of the day off from doing much else, or it’s just harder than you had hoped. You aren’t in competition with anyone except yourself. The goal should be to become a stronger and healthier you. This happens in small ways that add up over time.

abs

Know how many sessions you have and plan accordingly. The idea is to create a new normal, something to continue after cardiac rehab. I had 36 sessions and decided to go 2 times a week and have developed alternate workout plans to do at home so that I am working out 5 to 6 days a week.

Don’t go on a diet, but do consider changes you can make to your diet. The idea is for this work to pay off and the last thing you want to do is come home from working hard and sabotage all that effort.

this is my new baby  bicep muscle

this is my new baby
bicep muscle

Want to follow more of my exercise efforts?

Follow me on Instagram and Pintrest

The post Cardiac Rehab and Dysautonomia appeared first on Just Mildly Medicated.

]]>
/cardiacrehabanddysautonomia/feed/ 7 969
Scrambled Egg Muffins – A Gastroparesis Friendly Food! /scrambled-egg-muffins-gastroparesis-friendly-food/ /scrambled-egg-muffins-gastroparesis-friendly-food/#comments Fri, 20 Feb 2015 16:24:26 +0000 /?p=954 Scrambled Eggs Muffins (Yeah for easy Gastroparesis friendly foods!) I am not reinventing the wheel here, this recipe has been done many times over, Martha Stewart even had it on her show a million years ago. It is however new at the Just Mildly Medicated house and I wanted to share it. Many people with autonomic […]

The post Scrambled Egg Muffins – A Gastroparesis Friendly Food! appeared first on Just Mildly Medicated.

]]>
Scrambled Eggs Muffins (Yeah for easy Gastroparesis friendly foods!)

I am not reinventing the wheel here, this recipe has been done many times over, Martha Stewart even had it on her show a million years ago. It is however new at the Just Mildly Medicated house and I wanted to share it.

Many people with autonomic issues deal with Gastroparesis, Gastroparesis is a motility disorder where part of your stomach in paralyzed making it harder to digest food properly. Three of the six of us in my crew deal with Gastroparesis and one of them also has Celiac Disease. Needless to say finding easy meals that are also easy to tolerate is always a plus.

Eggs can be a go to food for those with Gastroparesis, but I am no super mom and am not making scrambled eggs for breakfast everyday. So when I saw the idea of making them in a muffin tin, giving us multiple servings to last a few days while only having to make them once, I was excited.

I grabbed the closest kids and said “Let’s try something” and they are willing to do anything in the kitchen (as long as it doesn’t involve any actual cleaning).

This is crazy easy!

Preheat oven to 400 degrees and spray a baking sheet with nonstick cooking spray

Eggs (we used a dozen)

milk (we used skim and I just eye ball it like I would for scrambled eggs)

cheese, ham, red pepper, literally anything you’d like to add!!

IMG_0534

I had cheese and ham on hand so that what we went with.

crack them eggs and add some milk, I put the mixers to work…

IMG_0537

IMG_0539

IMG_0557

Then I put some in each muffin tin and allowed the kids to add the extras

We did a row of cheese, a row of ham, and a row of ham and cheese ;)

IMG_0552

Then put them in the oven for about 12 to 15 minutes.

You can eat them right away or put them in a zip lock bag and then each morning I wrap them in a paper towel and pop them in the microwave (mine takes about 45 seconds).

Lesson learned… label this zip lock with what type of egg muffin is inside hahaha

These two kiddos are on their second scrambled egg muffin which means SUCCESS!

IMG_0562

IMG_0569

 

The post Scrambled Egg Muffins – A Gastroparesis Friendly Food! appeared first on Just Mildly Medicated.

]]>
/scrambled-egg-muffins-gastroparesis-friendly-food/feed/ 2 954
I’m baaack /im-baaack/ /im-baaack/#comments Wed, 28 Jan 2015 20:29:41 +0000 /?p=948 So there was this one mildly medicated chick that used to have a blog about life with Dysautonomia… and then she disappeared from the blogosphere… I have been flattered and surprised by the number of people who have come out of the wood work that messaged and emailed me asking what the heck was going […]

The post I’m baaack appeared first on Just Mildly Medicated.

]]>
So there was this one mildly medicated chick that used to have a blog about life with Dysautonomia…

and then she disappeared from the blogosphere…

I have been flattered and surprised by the number of people who have come out of the wood work that messaged and emailed me asking what the heck was going on, where did the Just Mildly Medicated girl go?

where are you

 

I forgot that others were sharing in my health journey… (wow, that sounds corny)

I second guessed my value; I wondered if I really had anything else worthwhile to write about?

I doubted you were even still out there…

I questioned if I had any business writing at all.

 

Now don’t get worried, I wasn’t rocking in a corner crying. I was just distracted and discouraged from writing in every way, shape, and form. I am happy to say I am back in the swing of things and have some things to share. I have found some gastroparesis friendly foods that I want to pass on in the hopes they work for others as well, I did get a new diagnosis that I’ll be writing about, and I also am starting a new therapy/rehab that I hope will improve my quality of life.

I do have things to share and I am back to sharing.

Love,

The Just Mildly Medicated gal

150x186 jmm gal

 

Find me on Facebook here 

I am over on Instagram here 

The post I’m baaack appeared first on Just Mildly Medicated.

]]>
/im-baaack/feed/ 7 948
I forgot my meds… /i-forgot-my-meds/ /i-forgot-my-meds/#comments Wed, 24 Sep 2014 15:15:47 +0000 /?p=927 I forgot my meds, a lot of days in a row… okay, a lot of weeks in a row… I think most people on a long term prescription routine fall off the wagon, be it a Just Mildly Medicated gal juggling many prescriptions or someone who has one steady nagging medication to take daily forevermore. […]

The post I forgot my meds… appeared first on Just Mildly Medicated.

]]>
I forgot my meds, a lot of days in a row… okay, a lot of weeks in a row…

I think most people on a long term prescription routine fall off the wagon, be it a Just Mildly Medicated gal juggling many prescriptions or someone who has one steady nagging medication to take daily forevermore.  This is about the summer when I was a Medical Radical and Pharmaceutical Nonconformist, okay so really it was more that I was just a pissy slacker.

radical

Many people make this choice; they get tired of paying for the medications, taking the medications, feeling the side effects of the medications, and not so much the original alleviation the medication was supposed to provide. They decide it isn’t working for them and discuss it with their doctor or decide to consult Google on if it is a medication that can just be stopped. (Come on, we’ve all consulted Google)

That is not this story…

To tell the story we must go back, way back… okay, it wasn’t that far back. Just take my word that I am super organized and took my meds exactly as I was supposed to, I handled my IV therapy like a pro and was hooked up (or flushed my port) at the same every day. I was also following a gastroparesis friendly diet (which I loathed), salt loading, and drinking plenty of fluids. I still didn’t feel “well” and I was a bit bitter about that, I mean who wouldn’t be?

When I spent a week at Mayo in Rochester, MN I was off meds and IV fluids for the duration. (I did stay on a few that the doctors at Mayo thought would not be good to just stop, but they were few). I actually didn’t feel all that much different. I kept waiting to come crashing down, but I felt my normal episodes and tested just about the same as before I started taking all of my medications.

It was talked about again that because of the gastroparesis (partial paralysis of the stomach linked with autonomic dysfunction) some of my meds may not be absorbing properly and I may not be receiving the benefit of them. My immediate thought was, “Then why in the hell am I taking them?!”

I tuned out on the last five minutes of the Mayo Clinic doctor speaking to me as Phil Collins came to me and sang I Don’t Care Anymore, and when Phil Collins comes to sing to you, well, you listen.

Phil also came to me and sang Sussudeo at the Cardiologist once… he and I have a connection… but I digress.

I wouldn’t say I was in a depression over the topic of being Just Mildly Medicated but apparently a seed of doubt and stubborn rebellion was planted. I think of it as a period of time that I tried to give my illness the middle finger as a treatment plan to see how that worked out.

When I came home I continuously “forgot” certain meds and became very lackadaisy with my IV treatments (lackadaisy means lazy and uncaring for any non-southern folk).  A routine that I once took very serious shifted and became a series of forgetting and not being very concerned about it. It wasn’t until months ater that a real decline in my health was undeniable.

My flares were lasting longer and happening more frequently, I still didn’t attribute it to the fact I hadn’t been taking half of the medications I was supposed to. I honestly didn’t even consider it. I can’t believe that it didn’t put a spark under me to get focused on my treatment plan, but I really didn’t admit to myself how off track I was.

It wasn’t until an episode that caught the attention of both my nurse and my husband.  In two separate conversations my husband pointed out that I’ve not been doing well and something needed to be done about it. My nurse knew my blood pressure readings had been odd and my weight changing. They both could track it to the last month and a half. That would be a month after my new routine of forgetting my meds.

I had to acknowledge to them, and myself, that I hadn’t been taking my medications as prescribed and I hadn’t stayed on top of my IV therapy; that this decline was likely of my own doing. Not a conscious choice to abandon my plan, just a gradual shift off the beaten treatment path.

meds

Dysautonomia is a chronic and progressive illness. This means it is forever and is likely to become worse over time. When taking all of my meds and IV therapy options as prescribed I still have episodes and I don’t feel “well”. However my treatment plan is important. It is designed to give me the most personal freedom over my illness that currently is offered.

I am back on track now and hope to be feeling an improvement very soon.

Love,

The reformed Medical Radical and Pharmaceutical Nonconformist Just Mildly Medicated gal <3

Keep Calm and Take your Meds

 

Want to check out when I took a tour of Canine Partners for Life for the service dog I am on a wait list for?

How about when Phil was buzzing Sussudio in my ear?

The post I forgot my meds… appeared first on Just Mildly Medicated.

]]>
/i-forgot-my-meds/feed/ 7 927
Life with Pandysautonomia /life-with-padysautonomia/ /life-with-padysautonomia/#comments Mon, 22 Sep 2014 20:24:00 +0000 /?p=921 As a blogger it only makes sense that I am also a blog reader. Occasionally I find a blogger that makes me sit and read while mumbling, “Seriously, she nailed it, that is exactly how I feel!” Well that is exactly how I feel about Rach from The Chronic-Ills of Rach. Take a second to read Rach’s 30 […]

The post Life with Pandysautonomia appeared first on Just Mildly Medicated.

]]>
As a blogger it only makes sense that I am also a blog reader. Occasionally I find a blogger that makes me sit and read while mumbling, “Seriously, she nailed it, that is exactly how I feel!” Well that is exactly how I feel about Rach from The Chronic-Ills of Rach. Take a second to read Rach’s 30 Things About My Illness and then head over to her blog and check her out!

 

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Pandysautonomia

2. I was diagnosed with it in the year: 2012

3. But I had symptoms since: I was a teenager

4. The biggest adjustment I’ve had to make is: to the difference between what I hoped my life would be like and what is actually is like.  I let go of a little bit more every day.  That is hard.

5. Most people assume: that someone will just fix me

6. The hardest part about mornings are: juggling the meds/food/fluids so I can get vertical.  If I get it wrong I will pay for it all day.

7. My favorite medical TV show is: hmmm.  One Born Every Minute!

8. A gadget I couldn’t live without is: My seat/cane

9. The hardest part about nights are: managing my bladder

10. Each day I take 27 pills & vitamins. (No comments, please)

11. Regarding alternative treatments I: have tried almost everything, but the only one that stood up was osteopathy

12. If I had to choose between an invisible illness or visible I would choose: visible.

13. Regarding working and career:  I miss it.

14. People would be surprised to know: that I actually have really high standards. If they judged me based on how things are they would think I am a lazy housekeeper, unambitious and probably a bit mental.

15. The hardest thing to accept about my new reality has been: falling short of my own standards every day.

16. Something I never thought I could do with my illness that I did was: stood up to doctors and ask for what I need.

17. The commercials about my illness: ?

18. Something I really miss doing since I was diagnosed is: being physical

19. It was really hard to have to give up: my dreams for our family, the plans we had as a couple.

20. A new hobby I have taken up since my diagnosis is: writing

21. If I could have one day of feeling normal again I would: dance

22. My illness has taught me: to be a patient patient, but only to a point!

23. Want to know a secret? One thing people say that gets under my skin is: how are you?

24. But I love it when people: really want to know.

25. My favorite motto, scripture, quote that gets me through tough times is: slowly slowly catchee monkey

26. When someone is diagnosed I’d like to tell them: to get as informed as they can, join a support group, distract.

27. Something that has surprised me about living with an illness is: how many other people are, too.

28. The nicest thing someone did for me when I wasn’t feeling well was: listen.

29. I’m involved with Invisible Illness Week because:  I believe when people know how many people suffer there will be more kindness.

30. The fact that you read this list makes me feel: like I am not just a statistic.

 

Rach

The post Life with Pandysautonomia appeared first on Just Mildly Medicated.

]]>
/life-with-padysautonomia/feed/ 2 921
Red Band Society (IMO) /red-band-society-imo/ /red-band-society-imo/#comments Thu, 18 Sep 2014 18:38:53 +0000 /?p=908 The Red Band Society is a new show that premiered September 17th on Fox about a group of teenagers who are currently in a pediatric ward of a hospital. There seems to be a heavy emphasis on them “living” there when in fact the entire first season covers a 3 week period. The show has mixed reviews […]

The post Red Band Society (IMO) appeared first on Just Mildly Medicated.

]]>
The Red Band Society is a new show that premiered September 17th on Fox about a group of teenagers who are currently in a pediatric ward of a hospital. There seems to be a heavy emphasis on them “living” there when in fact the entire first season covers a 3 week period.

The show has mixed reviews at best and I can see why.  The pilots focus seemed to be on the preexisting relationships as well as the ones newly forming. The medical issues seemed very secondary, bordering a sympathy pull at best. They portray varying ages and conditions, which is a plus. Though one of the kids is prepping for surgery the others are in various stages of hanging out.

There are some things that I had a hard time getting over. Things like if the kids were well enough to be roaming the hospital, taking off in a doctors car, and having a party, all in the same afternoon I can’t help but feel the reality is they would be out-patient. On the flip side it was one day and on any given day yes, they could all be there.

I’ve been admitted for 2 weeks and never interacted with another patient other than surface smiles and light conversation if we were in the same area getting ready for a similar test.

Honestly when I’ve been admitted, often after passing out like our lovely snarky cheerleader (whom I do actually love) I haven’t been much able to get up from the bed let alone make friends. They slap a yellow Fall Risk bracelet on me, start an IV and monitors and I have to call the nurse every time I need to go to the bathroom.

fallrisk_bracelet1

My feelings are incredibly mixed. Do I think they are scratching the surface of what patients actually go through? Not yet, not even close, I am not even sure if that is the intention. I do feel like they are showing that kids suffering with illness have the same everyday teen issues like crushes, kisses, friendships, and family drama; in that sense it does help normalize the reality that with illness still comes life.

They do nail the point that hospitals do become normal for kids with medical issues and those kids can have fun there. My son isn’t admitted long term but his gastroparesis is being monitored weekly with a full day of tests once a week. We check in Friday morning at 9 and go home after 5, that is our current norm. There is down time between tests and he plays.

image    image    image

These were all taken the same day but only the fun picture seems to be what the show is interested in at this point.

Now here is where I change my mind.

It’s a show, it isn’t a documentary on life in a pediatric ward.

Maybe they will show more of a day in the life of each of the kids to include more of their life with a medical issue,  maybe it will stay teen drama with dark medical stuff in the back ground of awesomely decorated rooms (I mean seriously, the rooms are a bit too awesome). I am going to watch the first season to see.

Did you watch? Are you going to keep watching?

Red Band Society on Fox

 

 

The post Red Band Society (IMO) appeared first on Just Mildly Medicated.

]]>
/red-band-society-imo/feed/ 1 908